Some stories begin with purpose. Others are born from pain. And sometimes, those two things weave together to create a mission that’s both deeply personal and urgently needed. That’s a Nonprofit.
That’s the story of Robyn Spoon, founder of Elevate Childhood Cancer Research and Advocacy. When Robyn’s son, Justin, was diagnosed with rhabdomyosarcoma in 2020, her world changed overnight. A seasoned leader in education advocacy, she suddenly found herself navigating a broken, underfunded system of childhood cancer care—with outdated treatment options and little support for families like hers.
But rather than stay overwhelmed, Robyn got curious. She asked questions. She listened. And she built something new.
Today, Elevate is a nonprofit working to improve the lives of children with cancer from diagnosis through survivorship. Robyn and her team are creating coalitions, building registries, developing education tools, and breaking down systemic barriers—all while centering the voices of those most affected. It’s bold. It’s thoughtful. And it’s deeply human.
What Stood Out to Me
Robyn said something that stopped me in my tracks: “I have nothing left to lose at this point.” That level of honesty—of clarity—fuels her ability to advocate with such unwavering focus. Her son’s passing didn’t end her work. It deepened it. And that authenticity is part of what makes her such a powerful force in this space.
3 Takeaways from Robyn’s Approach
- Start by Listening. Whether she’s joining a national policy team or launching a new workgroup, Robyn begins with curiosity. She respects institutional knowledge and looks for gaps she can help fill, not override.
- Make Advocacy Actionable. Robyn doesn’t just raise awareness—she gives people ways to get involved. That could be a one-time volunteer role, a donation, or using professional skills to support families in treatment.
- Build Community, Not Competition. Collaboration isn’t just a value at Elevate—it’s a core strategy. Robyn actively partners with scientists, nonprofits, and families to solve complex problems together. It’s what makes the work sustainable.
Want the Full Story?
Robyn’s full interview is filled with hard-earned wisdom and hopeful reminders. If you want to hear how one leader turned heartbreak into hope—and what it means to lead with clarity, courage, and compassion—👉 Subscribe to Nonprofits Today and listen to our full conversation with Robyn Spoon HERE!
